Feel like you’re a world apart from what your life used to be? So much changes when you become the parent of a special needs child. Or you unexpectedly gained an angel baby. Or you found out it’s going to be harder than you thought to start a family. Or living the parenting life just wasn’t what you thought it would be.
Who you think you are becomes somebody new. You get lost in what you think it’s supposed to be before noticing the signposts of experience. You learn skills you never thought were possible. An unexpected parenting role you take on is caretaker.
You learn the impossible is absolutely possible. That you can survive far more than you knew. That you can overcome, and will, because you must.
I have a swap between my 18th and 1st chromosomes. My daughter has Partial Trisomy 18. My home’s a special needs household. So I’ve lived all three — navigating the impact on my fertility, trials of the NICU and learning to take care of a kiddo who has a rare genetic arrangement, building a good life to meet her special needs, and more.
My husband and I have had special needs parenting adventures since 2015 when our daughter Aubby was born… a lot of hurtful experiences that paved the way to miracles, lessons, and personal development.
I joined a few support groups after we brought her home from NICU. I’ve learned so much by trial-and-error. But I wanted to help other families like mine in a bigger way, so turned to share what has worked for me.
What does ChromoChallenges offer?
ChromoChallenges is a health blog for Trisomy 18, Balanced Translocation, and Special Needs living through the use of clean living for gut health. I created this blog to speak more at length about how my family cares for our daughter’s needs and about what we’ve experienced.
On ChromoChallenges, I share:
- Info for families new to medical parenting & special needs living
- How I help my child who has Partial T18 develop optimum potential
- Experiences with having a Balanced Translocation
- How mundane-meets-medical after my second child who has typical chromosomes
- Coping with multiple allergies
- Coping with GI (gastrointestinal) issues
- Answers for requested content or questions you contact me about
… Everything I wished I’d known at the start of my family’s journey.
Thanks for visiting.
Nice to meet you. Welcome to the life of a medical parent, and to the courage it takes to stand for who and what you believe in.
What I know is– It’s okay to not be okay. What we need to do is accept and care for where we are.
The way forward is you need to believe in you.
Don’t get caught in “can’t” – so much more is possible. Just find, allow, and be open to reaching your best outcomes.
There is more to this hard place– Grow.
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